The BMJ are reporting that four members of NICE’s guideline committee on ME/CFS have stood down. One is the medical advisor of the ME Association, who stated yesterday that he found it too difficult to combine membership of the committee with his wish to comment publicly in the media about […]
Tag: CFS
Our response to that controversial study on CBT outcomes in chronic fatigue has now been formally published
As you read here in February, David Tuller and I attempted to respond to an alarming research paper that appeared in a recent issue of the Journal of the Royal Society of Medicine. The paper they had published had purported to show evidence that cognitive behavioural therapy leads to symptom improvements in […]
The BMJ’s ambiguous editorial commitment to scientific rigour
Here is my letter to the BMJ. I think it is pretty self-explanatory (nonetheless, I have added some additional context below the fold): Date: Sep 11, 2019To: <Fiona Godlee>, Editor in Chief, BMJRE: BMJ’s scientifically and ethically indefensible decision about Bristol’s Lightning Process study Dear Dr Godlee, First of all, […]
Human Factors in ME/CFS research
I will be speaking in Belfast tonight, at the Hope 4 ME & Fibro NI annual conference, on the topic of human factors in ME/CFS research. Here’s one of my slides… The full title of my presentation is Off the PACE and not NICE: Challenges with Evidence in ME/CFS. (I […]
If you spend 20 years gaslighting your patients, perhaps you should think twice before accusing *them* of trolling *you*
This week we learned that online activists are silencing scientists in the UK: Reuters contacted a dozen professors, doctors and researchers with experience of analysing or testing potential treatments for chronic fatigue syndrome. All said they had been the target of online harassment because activists objected to their findings. Only […]
The HRA report does not exonerate the PACE trial, it merely confirms that its Research Ethics paperwork was in order
Great news. The PACE Trial controversy has been resolved! Oh, wait…er, no it hasn’t. Rather, the spin cycle of eminence-based medicine continues. The UK’s Health Research Authority have released a report on their assessment of the beleaguered PACE Trial, and have concluded that they are happy with it. Cue the […]