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Getting it Right: Addressing Myths about the 2021 NICE Guideline for ME/CFS

Earlier this month, on World ME Awareness Day, I spoke at the Hope 4 ME & Fibro NI conference in Belfast. The event was hosted in the Stormont Parliament Buildings by Alliance Party MLA, Paula Bradshaw.

The title of my lecture was Getting it Right: Addressing Myths about the 2021 NICE Guideline for ME/CFS. I outlined eight pieces of misinformation regarding the new guideline (and about ME/CFS more generally) that are currently being pushed from certain quarters.

These myths included:

  • “CBT and GET are ‘evidence-based’ treatments for ME/CFS!”
  • “Evidence cannot just ‘change’!”
  • “The NICE review was driven by patient advocacy!”
  • “The defenders of the old guideline are simply standing up for science!”
  • “You cannot evaluate ME/CFS outcomes using objective measures!”

And so on. There were plenty more…

I am delighted to report that the video of my talk has now been posted on YouTube. You can stream it below:

So much material. You know, a person could even write a book about all this…

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With thanks to Joan McParland, Linda Campbell, and all at Hope 4 ME & Fibro NI for organising the event, and to Alpha Video for producing such a high-quality recording.

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