Tag: CFS/ME

person covered with gray blanket

No More Mr NICE Guy…

The newly released draft NICE guidelines for the management of “myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome” continue to cause a stir. And rightly so. The new guidelines not only repudiate a heretofore favoured treatment approach for a particular illness, they also threaten to discredit an entire (albeit quirky) branch of […]

Human Factors in ME/CFS research

I will be speaking in Belfast tonight, at the Hope 4 ME & Fibro NI annual conference, on the topic of human factors in ME/CFS research. Here’s one of my slides… The full title of my presentation is Off the PACE and not NICE: Challenges with Evidence in ME/CFS. (I […]

If you spend 20 years gaslighting your patients, perhaps you should think twice before accusing *them* of trolling *you*

This week we learned that online activists are silencing scientists in the UK: Reuters contacted a dozen professors, doctors and researchers with experience of analysing or testing potential treatments for chronic fatigue syndrome. All said they had been the target of online harassment because activists objected to their findings. Only […]