To fully understand the future, it is important to know the past. Next week, we finally get to see that long awaited new NICE treatment guideline for ME/CFS. As regular readers will know, all indications so far suggest the new guideline will be dramatically different from the old one. Graded […]
I was delighted to be part of this panel discussion on Gez Medinger‘s YouTube channel, RUN-DMC. As many readers will know, Gez is a London-based film producer and director who has been debilitated with severe Long COVID ever since contracting Covid early in the pandemic. His YouTube channel is now […]
Is it just me, or is the BMJ’s take on those NICE guideline committee resignations maybe a little biased?
The BMJ are reporting that four members of NICE’s guideline committee on ME/CFS have stood down. One is the medical advisor of the ME Association, who stated yesterday that he found it too difficult to combine membership of the committee with his wish to comment publicly in the media about […]
David Tuller (University of California, Berkeley), Steven Lubet (Northwestern University), and I have written an opinion piece over at Health Affairs. It’s on the implications of recent developments in ME and chronic fatigue syndrome for the treatment of Long COVID. We argue that the paradigm shift signalled by the UK’s […]
Our response to that controversial study on CBT outcomes in chronic fatigue has now been formally published
As you read here in February, David Tuller and I attempted to respond to an alarming research paper that appeared in a recent issue of the Journal of the Royal Society of Medicine. The paper they had published had purported to show evidence that cognitive behavioural therapy leads to symptom improvements in […]
Here is a video of a lecture I gave in Belfast just before COVID, entitled “Off the PACE and not NICE: Challenges with Evidence in ME/CFS.” The lecture was part of a conference organised by Hope 4 ME & Fibro NI (kudos to Joan McParland and team). It hasn’t been […]